Round Two

We’ve had an interesting time since I last updated… Josh is now refusing to patch at all, and we’ve given up trying to get the contact lens in. We did put it in last week but it fell out at some point. I found it the following day after sweeping the floor, rehydrated it and […]


I was so completely terrified about the whole contact lens thing, so I was more than happy to have a couple of weeks wait between the surgery and the lens arriving. Josh recovered beautifully from the surgery, with very little redness or swelling, and we even managed to integrate the antibiotic/anti-inflammatory drops into our routine […]

A Fake What…?

Since I last posted we have done a lot of research. Lots of googling, making phone calls, emailing, trawling through forums, and generally making a nuisance of ourselves with the doctors involved in Joshie’s procedure. We’ve been heartened by what we’ve read and what we’ve been told, and are going into tomorrow’s surgery safe in […]

Plan B

As Josh’s condition is so rare, the treatment options are limited, and so is the information about them. We talked to a lot of people and did a lot of research on our own to get our heads around what we needed to do. Our PO presented surgery as an option, but she didn’t push […]